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Genetic privacy and confidentiality are sometimes thought to be more important than privacy and confidentiality in other kinds of research for a number of reasons, including:

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Genetic information is shared among "blood" relatives, including the subject's parents, siblings, and children. It can be difficult to maintain privacy and confidentiality.

What is Genetic Privacy?

Genetic privacy refers to the idea of individual privacy with regard to the collection, use, sharing, and presentation of information about a person's genetic makeup. This idea includes the privacy of being able to identify particular people based on their genetic makeup and the possibility of learning certain details about them, such as their propensity for certain diseases or their recent or distant lineage, from certain parts of their genetic makeup.

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